Mirjam Bink’s story about her father and his attempt to access a new treatment for multiple system atrophy.
Blog
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April 11, 2017
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April 06, 2017
Last Thursday morning introduced us to spring, and what an entrance it made. The sun was shining, commuters passed each other with smiles, and the faint hum of summer could be heard for miles.
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March 29, 2017
The PBS, Australia’s national program responsible for providing subsidised prescriptions, has announced the addition of several new medicines
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December 07, 2016
Australia’s personal importation scheme is a well-regulated system that has been around since the 1980s.
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November 26, 2016
How our community celebrated remission!
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As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?
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May 26, 2016
Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.
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April 29, 2016
We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.
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April 26, 2016
Promising Results from Multiple Studies
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March 18, 2016
The FDA approval of a promising new drug is offering new hope to multiple myeloma patients who have already been through various treatments.
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March 16, 2016
If you are experiencing ALS too, this page was written specifically for you.
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March 01, 2016
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February 24, 2016
Multiple myeloma is a treatable but incurable blood cancer that typically occurs in the bone marrow.
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February 18, 2016
When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.
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February 09, 2016
A new treatment that targets a specific type of lung cancer has received FDA approval.
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February 05, 2016
We start new medications and treatments with the greatest of intentions, but everyday life often has other plans.
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January 14, 2016
If you thought your smartphone’s only use during your treatment was accessing Candy Crush in the waiting room, you thought wrong.
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December 08, 2015
On Sunday former US president and Nobel Peace Prize laureate proclaimed to a Sunday school class that he is cancer-free.
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August 14, 2015
There were no more treatments left for Danny van Brenk in the Netherlands. His cancer had metastasized and untreatable. They could treat him in New York however. But the treatments are expensive.
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The Pharmaceutical and Medical Device Agency (PMDA), has granted marketing approval for the use of Edaravone for the treatment of ALS in Japan.
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Impressive results have been published last week regarding two new immunotherapies.