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  1. The pricing controversy surrounding Duchenne muscular dystrophy (DMD) treatment

    The latest events surrounding the pricing of a Duchenne muscular dystrophy (DMD) treatment

     Duchenne muscular dystrophy (DMD) treatment price

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  2. A patient’s right to try

    Mirjam Bink’s story about her father and his attempt to access a new treatment for multiple system atrophy.

    Mirjam Bink father multiple system atrophy

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  3. A look back, a step forward

    Last Thursday morning introduced us to spring, and what an entrance it made. The sun was shining, commuters passed each other with smiles, and the faint hum of summer could be heard for miles. 

    The Social Medwork team

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  4. Australia’s Pharmaceutical Benefits Scheme (PBS) announce new treatments and price cuts for over 1000 medications

    The PBS, Australia’s national program responsible for providing subsidised prescriptions, has announced the addition of several new medicines

    globe Australia

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  5. Newspaper article by 'The Age'

    Australia’s personal importation scheme is a well-regulated system that has been around since the 1980s.
    Man reading a newspaper

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  6. Marriages, businesses, and lots of bubbles!

    How our community celebrated remission!

    bride tossing flowers

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  7. Apps that help patients stay connected to their friends and family

    As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

    apps for patients

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  8. The three (free!) things that patients told us helped them get through their worst days.

    Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

    woman smiling

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  9. 20 Things You Need to Include in your Hospital Bag

    We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

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  10. Nivolumab Dominates the News

    Promising Results from Multiple Studies

    nivolumab news

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  11. Daratumumab approved as multiple myeloma treatment

    The FDA approval of a promising new drug is offering new hope to multiple myeloma patients who have already been through various treatments. 

    Daratumumab multiple myeloma treatment

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  12. If you have ALS

    If you are experiencing ALS too, this page was written specifically for you.

    Garmt van Soest

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  13. Karin Meurs, M.Sc.

    Finance Management

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    Karin Meurs, M.Sc.
  14. 10 Things You Need To Know About Multiple Myeloma

    Multiple myeloma is a treatable but incurable blood cancer that typically occurs in the bone marrow. 

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  15. 8 Gifts Patients Really Want (From Real Patients!)

    When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.

    bed

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  16. Alectinib approved for the treatment of ALK-positive NSCLC

    A new treatment that targets a specific type of lung cancer has received FDA approval. 

    Alectinib treatment ALK-positive NSCLC

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  17. Medication Reminder Apps That Think Outside The (Pill)Box

    We start new medications and treatments with the greatest of intentions, but everyday life often has other plans.

    Medication reminder apps

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  18. 6 Incredibly Useful Apps for Cancer Patients

    If you thought your smartphone’s only use during your treatment was accessing Candy Crush in the waiting room, you thought wrong.


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  19. Jimmy Carter’s cancer remission highlights the power of pembrolizumab

    On Sunday former US president and Nobel Peace Prize laureate proclaimed to a Sunday school class that he is cancer-free.

    Jimmy Carter cancer

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  20. The story of Danny van Brenk - Cancer fighter

    There were no more treatments left for Danny van Brenk in the Netherlands. His cancer had metastasized and untreatable. They could treat him in New York however. But the treatments are expensive.

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  21. Edaravone approved in Japan for the treatment of ALS

    The Pharmaceutical and Medical Device Agency (PMDA), has granted marketing approval for the use of Edaravone for the treatment of ALS in Japan.

    Man in a wheelchair

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  22. Promising results for cancer-immunotherapies revealed!

    Impressive results have been published last week regarding two new immunotherapies. 

    Lab Image

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