Resources

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  1. 30 minutes with Esther Dyson

    A chat with our very first angel investor about patients, doctors and injecting innovation into the healthcare sector

    Esther Dyson

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  2. Defining ocrelizumab's role within the MS treatment landscape

    Ocrevus (ocrelizumab) was approved in the US by the FDA in March 2017 for the treatment of adults with relapsing or primary progressive forms of MS, based on three clinical trials.

    ocrelizumab MS treatment

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  3. Radicava is now available in the US – What does this mean for me?

    For US patients and patients worldwide with ALS.

    radicava USA

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  4. Trailblazing Amsterdam’s Canals

    Amsterdam leads European cities as top tech destination and why it’s only natural that it is home to TheSocialMedwork.

    Amsterdam innovation health

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  5. Edaravone availability in the US - one month to go

    As we await the arrival of edaravone to US pharmacies, patients can access edaravone now through TheSocialMedwork.edaravone best price

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  6. We made an animated video!

    Making an animated video for a startup on a limited budget

    video motion graphic health

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  7. You can’t stop the wave, but you can learn to surf

    What makes a startup succeed?

    startup health thesocialmedwork

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  8. PrEP for HIV Prevention

    With recent drops in new HIV diagnoses being linked to buying PrEP through online buyers clubs, the addition of PrEP to the WHO's essential medicine list, and the recent approval of generic PrEP in the US - here’s what you need to know.

    PrEP for HIV Prevention

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  9. ALS awareness month

    What did we get up to, and what's next?

    ALS awareness

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  10. 5 things you need to know about multiple sclerosis (MS)

    Get the latest news on MS research, the FDA approval of Ocrevus (ocrelizumab) for both relapsing and progressive forms of MS, insights and resources.

    multiple sclerosis

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  11. Another high price tag for Duchenne muscular dystrophy treatment

    PTC Therapeutics announce the launch of Emflaza for the treatment of Duchenne muscular dystrophy (DMD) within the coming weeks, with an expected net price of $35,000.

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  12. Accessing edaravone in your country - the new FDA approved drug for ALS

    What are the results from the clinical studies that led to the approval of edaravone, and how can patients access it in their country?

    edaravone FDA ALS

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  13. Radicava/Radicut (edaravone) for ALS

    For the first time in 22 years, the US Food and Drug Administration (FDA) has approved a drug to treat patients with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease; a motor neuron disease characterised by muscular atrophy and weakness.
    Radicava Radicut edaravone ALS

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  14. Science saves lives!

    Top 5 medical breakthroughs from the past, present and future

    march for science

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  15. The pricing controversy surrounding Duchenne muscular dystrophy (DMD) treatment

    The latest events surrounding the pricing of a Duchenne muscular dystrophy (DMD) treatment

     Duchenne muscular dystrophy (DMD) treatment price

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  16. A patient’s right to try

    Mirjam Bink’s story about her father and his attempt to access a new treatment for multiple system atrophy.

    Mirjam Bink father multiple system atrophy

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  17. A look back, a step forward

    Last Thursday morning introduced us to spring, and what an entrance it made. The sun was shining, commuters passed each other with smiles, and the faint hum of summer could be heard for miles. 

    The Social Medwork team

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  18. Australia’s Pharmaceutical Benefits Scheme (PBS) announce new treatments and price cuts for over 1000 medications

    The PBS, Australia’s national program responsible for providing subsidised prescriptions, has announced the addition of several new medicines

    globe Australia

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  19. Newspaper article by 'The Age'

    Australia’s personal importation scheme is a well-regulated system that has been around since the 1980s.
    Man reading a newspaper

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  20. Marriages, businesses, and lots of bubbles!

    How our community celebrated remission!

    bride tossing flowers

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  21. Apps that help patients stay connected to their friends and family

    As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

    apps for patients

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  22. The three (free!) things that patients told us helped them get through their worst days.

    Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

    woman smiling

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  23. 20 Things You Need to Include in your Hospital Bag

    We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

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  24. Nivolumab Dominates the News

    Promising Results from Multiple Studies

    nivolumab news

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  25. Daratumumab approved as multiple myeloma treatment

    The FDA approval of a promising new drug is offering new hope to multiple myeloma patients who have already been through various treatments. 

    Daratumumab multiple myeloma treatment

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  26. If you have ALS

    If you are experiencing ALS too, this page was written specifically for you.

    Garmt van Soest

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  27. Karin Meurs, M.Sc.

    Finance Management

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    Karin Meurs, M.Sc.
  28. 10 Things You Need To Know About Multiple Myeloma

    Multiple myeloma is a treatable but incurable blood cancer that typically occurs in the bone marrow. 

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  29. 8 Gifts Patients Really Want (From Real Patients!)

    When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.

    bed

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  30. Alectinib approved for the treatment of ALK-positive NSCLC

    A new treatment that targets a specific type of lung cancer has received FDA approval. 

    Alectinib treatment ALK-positive NSCLC

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