Blog

Categories
  1. Radicava is now available in the US – What does this mean for me?

    For US patients and patients worldwide with ALS.

    radicava USA

    Read more »
  2. ALS awareness month

    What did we get up to, and what's next?

    ALS awareness

    Read more »
  3. 5 things you need to know about multiple sclerosis (MS)

    Get the latest news on MS research, the FDA approval of Ocrevus (ocrelizumab) for both relapsing and progressive forms of MS, insights and resources.

    multiple sclerosis

    Read more »
  4. A patient’s right to try

    Mirjam Bink’s story about her father and his attempt to access a new treatment for multiple system atrophy.

    Mirjam Bink father multiple system atrophy

    Read more »
  5. Marriages, businesses, and lots of bubbles!

    How our community celebrated remission!

    bride tossing flowers

    Read more »
  6. Apps that help patients stay connected to their friends and family

    As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

    apps for patients

    Read more »
  7. The three (free!) things that patients told us helped them get through their worst days.

    Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

    woman smiling

    Read more »
  8. 20 Things You Need to Include in your Hospital Bag

    We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

    Read more »
  9. If you have ALS

    If you are experiencing ALS too, this page was written specifically for you.

    Garmt van Soest

    Read more »
  10. 10 Things You Need To Know About Multiple Myeloma

    Multiple myeloma is a treatable but incurable blood cancer that typically occurs in the bone marrow. 

    Read more »
  11. 8 Gifts Patients Really Want (From Real Patients!)

    When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.

    bed

    Read more »
  12. Medication Reminder Apps That Think Outside The (Pill)Box

    We start new medications and treatments with the greatest of intentions, but everyday life often has other plans.

    Medication reminder apps

    Read more »
  13. 6 Incredibly Useful Apps for Cancer Patients

    If you thought your smartphone’s only use during your treatment was accessing Candy Crush in the waiting room, you thought wrong.


    Read more »
  14. The story of Danny van Brenk - Cancer fighter

    There were no more treatments left for Danny van Brenk in the Netherlands. His cancer had metastasized and untreatable. They could treat him in New York however. But the treatments are expensive.

    Read more »
Page
US United States 1